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Data

The innovative resources and tools found here can help you improve the quantity and quality of data used for your studies. PCORnet believes data networks should follow the principles of efficiency, interoperability, transparency, reproducibility, security, and inclusivity of stakeholders. Access pioneering data tools and models now!

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Research

Find innovations that can be applied across the research life cycle - from generating research questions, identifying patients and capturing data, to disseminating results back to participants and the public. Explore these tools and move your research forward!

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Resources

Check out these resources to tap into the wealth of experience and expertise available through PCORnet – or share your own innovative research resources. Search and share now!

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PCORnet Bariatric Study: Scientific Writing Lay Guide

Published by Joanna Ball | updated on October 6, 2017

This scientific writing lay guide was developed by the PCORnet Bariatric Study (PBS). The guide provides an overview of the general scientific manuscript writing process, including International Committee of Medical Journal Editors (ICJME) criteria guidelines, journal submission, and the specific process used in PBS. The guide can be shared with non-scientific stakeholders and revised to reflect the writing process in your study. If you have questions about this guide, please contact: Kathleen McTigue (kmm34@pitt.edu) Karen Coleman (J.Coleman@kp.org) Published June 2017 Read more

Stakeholder Feedback Survey Template

Published by Joanna Ball | updated on October 6, 2017

Use this survey template to guide the development of a tool to evaluate patient/participant engagement in your networks' research studies. Author(s): The Executive Antibiotics Stakeholder Advisory Group and the Engagement Leadership Core Published October 2017 Read more

Collecting Community Stories: The MyPaTH Story Booth Toolkit

Published by Joanna Ball | updated on October 3, 2017

This toolkit is designed to help you collect rich and meaningful stories from your community. The MyPaTH’s Story Booth materials in this toolkit include sample flyers, brochures, and interview prompts that can be adapted to your community with approval from the MyPaTH Story Booth IRB. Begin collecting and archiving your community’s stories in partnership with the MyPaTH Story Booth team! Want to learn more about the Story Booth Project? Visit the MyPaTH Story Booth website Listen to the PCORnet Best Practice Sharing Session about the MyPath Story Booth Published October 2017 Read more

Strategies to Increase Inclusiveness

Published by Joanna Ball | updated on October 2, 2017

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more


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