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Data

The innovative resources and tools found here can help you improve the quantity and quality of data used for your studies. PCORnet believes data networks should follow the principles of efficiency, interoperability, transparency, reproducibility, security, and inclusivity of stakeholders. Access pioneering data tools and models now!

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Research

Find innovations that can be applied across the research life cycle - from generating research questions, identifying patients and capturing data, to disseminating results back to participants and the public. Explore these tools and move your research forward!

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Resources

Check out these resources to tap into the wealth of experience and expertise available through PCORnet – or share your own innovative research resources. Search and share now!

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Clinical Data Research Networks (CDRN) 101

Published by Adrianna Evans | updated on January 12, 2018

This presentation provides an overview of CDRNs and how they use health data. This presentation can be used to learn more about CDRNs, their projects, and how they use their data. Read more

PCORnet Clinical Engagement Value Proposition

Published by Joanna Ball | updated on December 20, 2017

This resource - developed by the PCORnet Engagement Committee - provides a clear proposition for the value of incorporating research into daily medical practice that had not previously been well described or adopted. As stated in the document, "Fully engaging practicing clinicians in research and dissemination of findings accelerates patient engagement and study recruitment, increases quality of research and care, especially integrating results into clinical practice. For all of these reasons, it is essential to operationalize this value proposition and identify and resource solutions." Developed by: The PCORnet Engagement Committee Published: December 2017  Read more

PCORnet Obesity Demo Projects: Cycles 1-5 Evaluation Survey Questions

Published by Joanna Ball | updated on January 3, 2018

This resource contains the PCORnet Obesity Demo Projects [Antibiotics Study (ABX) and the PCORnet Bariatric Study (PBS)] evaluation survey questions from interim evaluation cycles 1-5. The evaluation activities for the Obesity Demo Projects focused on assessment of overall network functionality and PCORnet infrastructure support of large-scale observational research. Study-specific language has been removed and the format standardized in an effort to allow you to adapt the surveys for your use. Developed by: Brie Purcell & John Holmes Last updated: November 2017 Read more

SMART IRB Toolkit V1

Published by Joanna Ball | updated on December 19, 2017

This SMART IRB toolkit provides templates, guides, and best practices for institutions that would like to join SMART IRB or use it for a study. The toolkit chronologically outlines the necessary pieces around joining and using SMART IRB and provides support for both reviewing IRBs and relying institutions. Please reach out to Tamara Wurst (@tamara-wurst) if you have any questions or feedback for the toolkit. Curated by: Tamara Wurst and Amy Franklin Last Updated: November 13, 2017 Read more


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