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Data

The innovative resources and tools found here can help you improve the quantity and quality of data used for your studies. PCORnet believes data networks should follow the principles of efficiency, interoperability, transparency, reproducibility, security, and inclusivity of stakeholders. Access pioneering data tools and models now!

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Research

Find innovations that can be applied across the research life cycle - from generating research questions, identifying patients and capturing data, to disseminating results back to participants and the public. Explore these tools and move your research forward!

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Resources

Check out these resources to tap into the wealth of experience and expertise available through PCORnet – or share your own innovative research resources. Search and share now!

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The Greater Plains Collaborative Governance Materials (Public Wiki)

Published by Joanna Ball | updated on August 17, 2017

The Greater Plains Collaborative Governance Materials Public Wiki includes information in support of data sharing, governance, and IRB processes. Read more

The Greater Plains Collaborative Empirical Data Characterization reports

Published by Joanna Ball | updated on August 17, 2017

The Greater Plains Collaborative (GPC) has data for over 16 million patients - which can be queried for observational studies. All GPC sites are participating in the PCORnet Common Data Model and trimmed versions of each sites' Empirical Data Characterization Report can be found below. Use these reports to learn about the data available at each site. Children's Mercy Hospital EDC Indiana University / Regenstrief Institute EDC University of Kansas Medical Center EDC Marshfield Clinic Research Institute EDC  Medical College of Wisconsin EDC University of Missouri EDC University of Iowa EDC University of Minnesota EDC University of Nebraska Medical Center... Read more

PCORnet PPRN Table 1

Published by Joanna Ball | updated on August 11, 2017

The PPRN Demographic Table 1 includes data from the 20 Phase II PCORnet PPRNs and was compiled as of March 1, 2017. Read more

External Engagement Resources and Articles

Published by Joanna Ball | updated on August 9, 2017

Publication Title Author(s) Network for Excellence in Health Innovation Transparency in Health Care: A Priority Roadmap for Consumer Engagement  Caroline R. Steinberg, Vice President of Programs, NEHI Susan Dentzer, President and CEO, NEHI Therapeutic Innovation & Regulatory Science Assessing the Financial Value of Patient Engagement: A Quantitative Approach from CTTI’s Patient Groups and Clinical Trials Project Bennett Levitan, MD, PhD Kenneth Getz, MBA, Eric L. Eisenstein, DBA, Michelle Goldberg, MBA, Matthew Harker, MPH, MBA, Sharon Hesterlee, PhD, Bray Patrick-Lake, MFS, Jamie N. Roberts, MPH, MA, and Joseph DiMasi, PhD New England Journal of Medicine Catalyst Insights Council's report: Analysis of the fourth NEJM Catalyst... Read more


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