All Trainings and Presentations Resources

Clinical Data Research Networks (CDRN) 101

Published by Adrianna Evans | updated on January 12, 2018

This presentation provides an overview of CDRNs and how they use health data. This presentation can be used to learn more about CDRNs, their projects, and how they use their data. Read more

NIH: Clinical Trial Requirements for Grants and Contracts

Published by Joanna Ball | updated on August 30, 2017

From the National Institutes of Health Website: "NIH is launching a series of initiatives that are rolling out in 2017-2018 to enhance the accountability and transparency of clinical research. These initiatives target key points along the whole clinical trial lifecycle from concept to results reporting. Learn more about these changes and how they will affect your research." Read more

Best Practice Sharing Session: Using Narratives to Promote Engagement: The MyPaTH Story Project

Published by Joanna Ball | updated on November 13, 2017

Kathleen McTigue, MD, MPH describes how the PaTH Network has developed the MyPaTH Story Project, an archive of patient stories, to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research. The presentation describes how patients helped shape the project, the data that accompanies each story, and how the data collected can be used by researchers. To continue the dialogue about how patient stories can enrich your research and practice, follow the Commons Community Conversations group forum. Download the presentation slides and view the presentation using the links below. PCORnet BPSS Slides (PDF) BPSS Presentation... Read more

Best Practice Sharing Session: Leveraging Social Media to Raise Awareness and Build Community

Published by Joanna Ball | updated on November 13, 2017

Social media specialists Joseph M. Coe, MPA from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and M. Patricia McAdams, MS from PCORnet’s first demonstration study, ADAPTABLE, explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding. The session covers how to use metrics to inform channel strategy and content, how collaborations and partnerships can help reach more people, and offers guidelines, best practices, and useful tools and tips. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="480" height="360" mp4="http://pcornetcommons.org/wp-content/uploads/2017/06/2017-06-08-PCORnet-BPSS.mp4"][/video] Be sure to join the ongoing discussion about... Read more

Best Practice Sharing Session: Measuring an Epidemic: Using EHR Data to Track Trends in Opioid Prescribing

Published by Joanna Ball | updated on November 13, 2017

Speakers John Muench, MD, MPH and Thuy Le, MPH, both of OCHIN discuss the liberalizing of chronic opioid prescribing in the 90s was soon followed by unforeseen harm to individuals and communities. Muench and Le review the history of the rise in opioid addiction and overdose deaths,  prior efforts to track pain medication prescriptions, and current efforts to organize the ADVANCE Clinical Data Research Network electronic health record data to more easily describe prescribing pattern changes that follow interventions at national, state, and clinic levels. Download the presentation slides above and listen to the recorded webinar on PCORnet.org. Read more

Best Practice Sharing Session: ABOUT Network GAP Tools

Published by Joanna Ball | updated on November 13, 2017

ABOUT Network’s GAP 360 and GAP Tools process is a 7-step process for patient-centered research. Dr. Sue Friedman describes the GAP Tool process and discusses how hereditary cancer research gaps are identified through its use. Download the slide deck above (click “Download Resource”), or view the presentation. Read more

Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal from The Alzheimer’s PPRN

Published by Joanna Ball | updated on November 13, 2017

The Alzheimer’s PPRN describes their use of the Brain Health Registry Caregiver and Study Partner Portal in this PCORnet Best Practice Sharing Session. The online tool facilitates people-centered health research by assisting with recruitment, engagement, assessment, and education of caregivers. Dr. Michael W. Weiner, MD, Dr. Ronald C. Petersen, MD, PhD and Dr. Rachel L. Nosheny, PhD discuss the data collected using the Caregiver Portal and its potential impact on dementia research as well as ways the portal can be used to engage caregivers and study partners within and outside the PCORnet community. Download the slide deck above (click the "Download... Read more

Writing for the Clinical Research Setting

Published by Joanna Ball | updated on November 13, 2017

View a collection of webinars presented by Jonathan McCall, MS, the Managing Editor for Rethinking Clinical Trials and a senior science writer and editor for the Duke Clinical Research Institute. Each webinar provides an introduction to a particular aspect of writing for the clinical research space including: Writing peer-reviewed articles White papers Guidance documents Managing the writing and publication process Read more

Best Practice Sharing Session: PRIDEnet and AR-PoWER present Community Engagement Using Digital Technologies

Published by Amanda Schlichte | updated on January 3, 2018

This presentation from PRIDEnet and AR-POWER PPRN explores community engagement practices using online technologies. Use this guide to learn how to use multiple tools and platforms in engagement. Read more

SMART IRB: Joinder Checklist

Published by Amanda Schlichte | updated on November 7, 2017

This is a Joinder Agreement Informational Sheet. Use this to see what is needed to complete the Joinder process. Read more