All Stakeholder Engagement Resources

Initiative to Support Patient Involvement in Research (INSPIRE): Findings from Phase I Interviews (2016)

Published by Joanna Ball | updated on November 13, 2017

The attached Initiative to Support Patient Involvement in Research (INSPIRE): Findings from Phase I Interviews (2016) contains results from interviews of 23 researchers and 14 patient/family partners partnering on 23 Patient-Centered Outcomes Research Institute (PCORI)-funded projects in the Pacific Northwest. This report includes important findings on what makes partnerships successful as well as what is still needed in terms of training and support. Read more

Best Practice Sharing Session: ABOUT Network GAP Tools

Published by Joanna Ball | updated on November 13, 2017

ABOUT Network’s GAP 360 and GAP Tools process is a 7-step process for patient-centered research. Dr. Sue Friedman describes the GAP Tool process and discusses how hereditary cancer research gaps are identified through its use. Download the slide deck above (click “Download Resource”), or view the presentation. Read more

PaTH to Health Diabetes Study: Post Cards and Digital Newsletters

Published by Joanna Ball | updated on November 13, 2017

The "sneak peek" postcards are distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH's free bi-annual digital newsletter and feature a QR code that links directly to the newsletter. Use the postcards and newsletters below to help develop and create marketing materials for your organization. Promotional Postcards PaTH to Health Diabetes Postcard (promo for 2017 Winter/Spring newsletter) PaTH to Health Diabetes Postcard (promo for 2017 Summer/Fall newsletter) Newsletters 2017 Winter/Spring digital newsletter 2017 Summer/Fall digital newsletter    Read more

Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal from The Alzheimer’s PPRN

Published by Joanna Ball | updated on November 13, 2017

The Alzheimer’s PPRN describes their use of the Brain Health Registry Caregiver and Study Partner Portal in this PCORnet Best Practice Sharing Session. The online tool facilitates people-centered health research by assisting with recruitment, engagement, assessment, and education of caregivers. Dr. Michael W. Weiner, MD, Dr. Ronald C. Petersen, MD, PhD and Dr. Rachel L. Nosheny, PhD discuss the data collected using the Caregiver Portal and its potential impact on dementia research as well as ways the portal can be used to engage caregivers and study partners within and outside the PCORnet community. Download the slide deck above (click the "Download... Read more

REACHnet: Health in our Hands Clinic Manual

Published by Joanna Ball | updated on November 13, 2017

This document provides an understanding of REACHnet's Health in Our Hands initiative. Health in our Hands provides a way for patients to get involved in all aspects of the research process and acts as a connecting point for researchers and patients. This manual can be used to guide the creation of your own engagement materials and initiatives. Read more

Patient Engagement Videos

Published by Joanna Ball | updated on November 13, 2017

In 2013, Health Affairs partnered with the Patient Centered Outcomes Research Institute (PCORI) to produce videos about ways patients and practitioners are incorporating patient engagement in health care decisions. View the videos by clicking "Download Resource." You will be redirected to the Health Affairs webpage where the videos are posted. VIDEO 1: ENGAGING PATIENTS IN HEALTH CARE DECISIONS VIDEO 2: PATIENT ENGAGEMENT RESOURCES: CARE MAPS & CLINICAL TRIALS VIDEO 3: OVERCOMING PATIENT ENGAGEMENT BARRIERS: URBAN AND RURAL SUCCESS STORIES Read more

SCILHS: Stakeholder Engagement Policy

Published by Joanna Ball | updated on November 7, 2017

Use this document to learn more about stakeholder engagement, help you identify your stakeholders, and outline your own policies. Read more

ADVANCE: Building Meaningful Patient Engagement within a Clinical Data Research Network

Published by Jordan Capizola | updated on November 7, 2017

This PowerPoint presentation explores meaningful patient engagement. Use it to learn more about patient engagement within a CDRN. Read more

PCORnet: Clinician Engagement

Published by Jordan Capizola | updated on November 7, 2017

This presentation discusses the best ways to engagement clinicians in research studies. Use it to increase clinician engagement in your research study. Read more

Obesity Antibiotics Study: Engagement Plan

Published by Jordan Capizola | updated on November 7, 2017

This report details PCORnet's plan of how it will engage stakeholders throughout the PCORnet Obesity Antibiotics Study. Use it as an example of how engage stakeholders in your study. Read more