All Stakeholder Engagement Resources

Best Practice Sharing Session: Using Narratives to Promote Engagement: The MyPaTH Story Project

Published by Joanna Ball | updated on November 13, 2017

Kathleen McTigue, MD, MPH describes how the PaTH Network has developed the MyPaTH Story Project, an archive of patient stories, to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research. The presentation describes how patients helped shape the project, the data that accompanies each story, and how the data collected can be used by researchers. To continue the dialogue about how patient stories can enrich your research and practice, follow the Commons Community Conversations group forum. Download the presentation slides and view the presentation using the links below. PCORnet BPSS Slides (PDF) BPSS Presentation... Read more

Improving Collaboration among Health Communication, Health Education, and Health Literacy

Published by Joanna Ball | updated on November 13, 2017

Authors: Marin P. Allen, Elaine Auld, Robert Logan, J. Henry Montes, and Stacey Rosen This discussion paper published by the National Academy of Medicine on July 10, 2017, provides a call-to-action for health communication, health education, and health literacy practitioners to work together to enhance human health, improve health outcomes, and reduce health disparities. Read more

CCFA Partners: Citizen Scientist Infographic

Published by Joanna Ball | updated on November 13, 2017

CCFA Partners PPRN uses this infographic as part of their strategy to recruit new members. Use this to guide the development of your own recruitment infographic, flyer, or poster.  Read more

Clinician Engagement for Continuous Learning

Published by Joanna Ball | updated on November 13, 2017

This discussion paper was published on March 6, 2017, in the National Academy of Medicine's NAM Perspectives. The writers address how clinicians can advance and benefit from a continuously learning health system and also describe: The potential and importance of engaging clinicians in knowledge generation The challenges and strategies for aligning priorities between clinicians and researchers The barriers to data collection at the point of care   Read more

People-Driven Research Toolkit

Published by Joanna Ball | updated on November 13, 2017

The People-Driven Research Toolkit is intended to facilitate people-driven research ideation and prioritization. PXE International created this toolkit to help communities and others lead research prioritization in their community.  Open the interactive PDF document in Adobe Reader to fully benefit from its use. Published May 2017 Read more

Best Practice Sharing Session: Leveraging Social Media to Raise Awareness and Build Community

Published by Joanna Ball | updated on November 13, 2017

Social media specialists Joseph M. Coe, MPA from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and M. Patricia McAdams, MS from PCORnet’s first demonstration study, ADAPTABLE, explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding. The session covers how to use metrics to inform channel strategy and content, how collaborations and partnerships can help reach more people, and offers guidelines, best practices, and useful tools and tips. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="480" height="360" mp4="http://pcornetcommons.org/wp-content/uploads/2017/06/2017-06-08-PCORnet-BPSS.mp4"][/video] Be sure to join the ongoing discussion about... Read more

BMJ Article: Subjects no more: what happens when trial participants realize they hold the power?

Published by Joanna Ball | updated on November 13, 2017

This article published on 28 January 2014 in The BMJ, discusses the imbalances in the social contract of randomized controlled trials and how patient-powered research has emerged in response to such imbalances. This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/. Read more

The Impact of Community Involvement in Research

Published by Joanna Ball | updated on November 13, 2017

The Impact of Community Involvement in Research from PCORI on Vimeo. Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Online Research Portal

Published by Joanna Ball | updated on November 13, 2017

The recently launched INSPIRE Research Portal is an online library of resources designed for patients and researchers partnering on patient-centered outcomes research (PCOR), healthcare studies that actively engage patients in the research process from start to finish.  The portal includes resources for patients and researchers to use together, as well as those specific to each group. Look through the portal to find novel ways to make the research process more inclusive.  Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Community Workshop Report

Published by Joanna Ball | updated on November 13, 2017

The attached Initiative to Support Patient Involvement in Research (INSPIRE): Community Workshop Report presents the four learning sessions in a community workshop held July 18 and 19, 2016, in Seattle. The workshop brought together patients and researchers who are partnering on research studies throughout the Pacific Northwest. The purpose was to advance learning about effective patient-researcher partnerships and to discuss and prioritize gaps in tools, resources and training needed to support patient-researcher partnerships in patient-centered outcomes research (PCOR). This report includes the emerging ideas and themes generated from each group discussion and concludes with a report on the workshop evaluation... Read more