All Stakeholder Engagement Resources

PCORnet Clinical Engagement Value Proposition

Published by Joanna Ball | updated on December 20, 2017

This resource - developed by the PCORnet Engagement Committee - provides a clear proposition for the value of incorporating research into daily medical practice that had not previously been well described or adopted. As stated in the document, "Fully engaging practicing clinicians in research and dissemination of findings accelerates patient engagement and study recruitment, increases quality of research and care, especially integrating results into clinical practice. For all of these reasons, it is essential to operationalize this value proposition and identify and resource solutions." Developed by: The PCORnet Engagement Committee Published: December 2017  Read more

IBD Partners: Principles for Patient Collaboration V1

Published by Joanna Ball | updated on January 3, 2018

This resource was created by the IDB Partners Patient Governance Committee and intended to be given to investigators at the beginning of a project to help facilitate an open dialog with the patient collaborator(s). Use this to develop your own principles for effective stakeholder communication. Author(s): IDB Partners Patient Governance Committee Published: November 1, 2017 Read more

Best Practice Sharing Session: Clinician Engagement

Published by Adrianna Evans | updated on November 13, 2017

Engaging clinicians in research comes with many challenges, but there are also many key solutions. This presentation, hosted both on May 20th and May 21st, 2015 outlines these aspects and steps to engaging clinicians throughout the research process. Speakers: Dr. Robert Mentz, Duke University Dr. Matthew Roe, Duke University PCORnet Clinician Engagement Read more

Best Practice Sharing Session: Engagement of Multiple Stakeholder Groups

Published by Adrianna Evans | updated on November 13, 2017

LaCDRN discusses their approaches to engaging multiple stakeholder groups. In this webinar, originally hosted on June 23, 2015, you can learn about LaCDRN's structure and how they integrate the voices of different groups within that structure. Speakers: Dr. Rebekah Angrove, LaCDRN Sarah Pallin, LaCDRN [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/11/PCORnet-BPSS-LaCDRN-Engaging-Multi-Stakeholder-Groups.mp4"][/video] Read more

Best Practice Sharing Session: CDRN – PPRN Collaborations

Published by Adrianna Evans | updated on November 13, 2017

Collaborations across networks are an essential part of PCORnet. This webinar, originally hosted on September 29th, 2015 describes ways to collaborate between CDRNs and PPRNs. If you are interested in establishing such a relationship, please take a look at this session. Speakers: Dr. Russell Rothman, Mid-South CDRN Dr. Jeff Curtis, AR-POWER Dr. Ben Nowell, AR-POWER Dr. Michael Kappelman, CCFA PPRN   CDRN PPRN Collaborations _Final_DML Read more

Stakeholder Feedback Survey Template

Published by Joanna Ball | updated on November 13, 2017

Use this survey template to guide the development of a tool to evaluate patient/participant engagement in your networks' research studies. Author(s): The Executive Antibiotics Stakeholder Advisory Group and the Engagement Leadership Core Published October 2017 Read more

Collecting Community Stories: The MyPaTH Story Booth Toolkit

Published by Joanna Ball | updated on November 13, 2017

This toolkit is designed to help you collect rich and meaningful stories from your community. The MyPaTH’s Story Booth materials in this toolkit include sample flyers, brochures, and interview prompts that can be adapted to your community with approval from the MyPaTH Story Booth IRB. Begin collecting and archiving your community’s stories in partnership with the MyPaTH Story Booth team! Want to learn more about the Story Booth Project? Visit the MyPaTH Story Booth website Listen to the PCORnet Best Practice Sharing Session about the MyPath Story Booth Published October 2017 Read more

Wisconsin Network for Research Support (WINRS): Hard-to-Reach Patient Stakeholders: An Engagement Guide

Published by Joanna Ball | updated on November 13, 2017

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a toolkit for researchers and others who want to engage hard-to-reach stakeholders for patient-centered projects, including patient-centered outcomes research (PCOR). The toolkit was developed by the Wisconsin Network for Research Support (WINRS), a patient and community engagement resource based at the University of Wisconsin-Madison School of Nursing. The toolkit includes templates that researchers can adapt for specific projects, including a form to help researchers respectfully contact a community-based organization about collaboration on a research project. Important Information: HARPS is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. If you use or adapt... Read more

Obesity Antibiotics Study: Advancing the Science of Community Engaged Research

Published by Joanna Ball | updated on November 13, 2017

The engagement leadership team of the PCORnet Antibiotics Study surveyed the Executive Antibiotics Stakeholder Advisory Group (EASAG) regarding their participation and engagement in the study. The study explores the effects of antibiotic use during the first two years of life on BMI at ages 5 and 10. The goals of this survey were to determine stakeholder satisfaction; inform the study’s engagement process, and document lessons learned to benefit future studies. Its findings will be used to inform stakeholder inclusion in scientific studies, sustain engagement, and enhance future PCORnet stakeholder engagement. This poster was presented at the Advancing the Science of... Read more

Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community provides opportunities for interaction within and outside of PCORnet. Dr. Tom Carton, Chief Development Officer for the Louisiana Public Health Institute and Principal Investigator of REACHnet and Joanna Ball, Digital Community Manager for PCORnet Commons, show users can leverage the PCORnet Commons to turn their innovative ideas into tangible solutions and discussed the potential for using the Commons to further facilitate collaborations between PCORnet and NCATS (and beyond). PCORnet BPSS... Read more