All Research Resources

People-Driven Research Toolkit

Published by Joanna Ball | updated on November 13, 2017

The People-Driven Research Toolkit is intended to facilitate people-driven research ideation and prioritization. PXE International created this toolkit to help communities and others lead research prioritization in their community.  Open the interactive PDF document in Adobe Reader to fully benefit from its use. Published May 2017 Read more

Plain Language Principles Infographic

Published by Joanna Ball | updated on November 13, 2017

This infographic is focused on health literacy and using plain language in health research communications. Use these principles to help guide the creation of content that is easy to access and understand by a variety of audiences. Read more

PCORnet Resources and Environment (for use in grant applications)

Published by Joanna Ball | updated on November 13, 2017

This template text was composed for PCORnet investigators and collaborators of PCORnet to use in grant applications to describe the resources available and environment of PCORnet. Details of the PCORnet Distributed Research Network (DRN) structure, data infrastructure and security, and services and use cases are described. Read more

Rare Diseases Task Force Guidance Document

Published by Joanna Ball | updated on November 13, 2017

This guidance document is intended for PCORnet-affiliated researchers who are planning or implementing recruitment and retention activities for PCORnet rare disease research cohorts. The document was collectively written and edited by the inaugural members of the PCORnet Rare Diseases Task Force (RDTF). The document was published May 2015. Read more

Best Practice Sharing Session: ABOUT Network GAP Tools

Published by Joanna Ball | updated on November 13, 2017

ABOUT Network’s GAP 360 and GAP Tools process is a 7-step process for patient-centered research. Dr. Sue Friedman describes the GAP Tool process and discusses how hereditary cancer research gaps are identified through its use. Download the slide deck above (click “Download Resource”), or view the presentation. Read more

REACHnet: An overview and implications for clinical research

Published by Joanna Ball | updated on November 13, 2017

This report provides readers with a closer look at Research Action for Health Network's (REACHnet) framework, functions, and goals and how their work will impact the clinical research space. Read more

Quality by Design Principles for PCORnet Clinical Trials

Published by Joanna Ball | updated on November 13, 2017

This document was prepared by the Clinical Trials Task Force and adapted from a project conducted by the Clinical Trials Transformation Initiative. The content of the document is meant to promote proactive, cross-functional discussions and critical thinking as you begin trial development. Read more

Critical Considerations for Researchers Working with Health Systems

Published by Joanna Ball | updated on November 13, 2017

The linked document was developed by the Health Systems Interactions and Sustainability Task Force and highlights critical considerations for researchers who are working with health systems. The document gives high-level guidance on key topics and provides example materials that you can use for your study. Critical Considerations for Researchers Working with Health Systems Read more

Biorepository Task Force Resources

Published by Joanna Ball | updated on November 13, 2017

The documents linked below provide guidance recommendations and strategies for PCORnet biobank sustainability. They are products of the Biorepository Task Force. Biobank Sustainability Recommendations (.pdf) Biorepositories Task Force Informed Consent Guidance (.doc) Read more

Knowledge Repository for Pragmatic Clinical Trials

Published by Joanna Ball | updated on November 13, 2017

A product of the NIH Collaboratory, the Knowledge Repository provides you with access to helpful documents and resources for conducting pragmatic clinical trials. Follow the link to access the tools.   Read more