All Research Resources

Best Practice Sharing Session: PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 1. PCORnet Case Studies

Published by Joanna Ball | updated on January 10, 2018

The PCORnet Tools for e-consent workgroup is a collaborative space fostering innovation among those who are currently implementing or seeking to develop tools and strategies for obtaining electronic informed consent. This webinar - hosted on October 23, 2017 -  is the first in a two-part series and highlights real-world experiences implementing electronic consent among several PCORnet networks. This is an opportunity to interact with colleagues and learn about the innovative work being done in electronic consent. Speakers: Holly Robertson, Duke Clinical Research Institute (DCRI) Tom Carton, Louisiana Public Health Institute and REACHnet Colleen Lawrence, Vanderbilt Institute for Clinical and Translational... Read more

Stakeholder Feedback Survey Template

Published by Joanna Ball | updated on November 13, 2017

Use this survey template to guide the development of a tool to evaluate patient/participant engagement in your networks' research studies. Author(s): The Executive Antibiotics Stakeholder Advisory Group and the Engagement Leadership Core Published October 2017 Read more

Strategies to Increase Inclusiveness

Published by Joanna Ball | updated on January 10, 2018

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more

Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community provides opportunities for interaction within and outside of PCORnet. Dr. Tom Carton, Chief Development Officer for the Louisiana Public Health Institute and Principal Investigator of REACHnet and Joanna Ball, Digital Community Manager for PCORnet Commons, show users can leverage the PCORnet Commons to turn their innovative ideas into tangible solutions and discussed the potential for using the Commons to further facilitate collaborations between PCORnet and NCATS (and beyond). PCORnet BPSS... Read more

PEDSnet Research Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to find all of PEDSnet's research resources. Here you can find resources to learn more about PEDSnet's IRB, agreements, forms, PI responsibilities, site surveys, and publications. To access all of PEDSnet's resources, please go to Read more

PEDSnet IRB/Regulatory Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to find all of PEDSnet's resources surrounding IRB or regulatory policies hosted on their website. Learn more about their policies and programs surrounding their Institutional Review Board. There are resources on human subjects protection, non-human subjects research, site surveys, PI responsibilities, board authorization, and more.   Find all of PEDSnet's resources at Read more

Trial Innovations Network: Clinical Trials Toolkits

Published by Joanna Ball | updated on September 6, 2017

The Trial Innovation Network is hoping to curate self-service tools and resources that researchers can use at any stage of their projects. Currently, The Recruitment and Retention Toolkit is available. Additional toolkits will become available as the Trial Innovation Network evolves and develops. Read more

NIH: Clinical Trial Requirements for Grants and Contracts

Published by Joanna Ball | updated on August 30, 2017

From the National Institutes of Health Website: "NIH is launching a series of initiatives that are rolling out in 2017-2018 to enhance the accountability and transparency of clinical research. These initiatives target key points along the whole clinical trial lifecycle from concept to results reporting. Learn more about these changes and how they will affect your research." Read more

GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

Published by Joanna Ball | updated on November 13, 2017

This open access article was published in the British Medical Journal on 2 August 2017: "This paper describes the development of the GRIPP2 reporting checklists, which aim to improve the quality, transparency, and consistency of the international patient and public involvement (PPI) evidence base, to ensure that PPI practice is based on the best evidence." Read more

Eureka Digital Research Platform

Published by Joanna Ball | updated on November 13, 2017

This resource provides background information about the Eureka Digital Research Platform developed by the Health eHeart Alliance. Eureka was built by Health eHeart Alliance researchers from the University of California San Francisco and sponsored by the NIH. The platform is available to anyone who wants to conduct medical or health-related human subject-based research, including citizen-scientists, NIH investigators, university or other non-profit investigators, industry investigators or others. Read more