All Trial Management and Retention & research Resources

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Rare Diseases Task Force Guidance Document

Published by Joanna Ball | updated on May 5, 2017

This guidance document is intended for PCORnet-affiliated researchers who are planning or implementing recruitment and retention activities for PCORnet rare disease research cohorts. The document was collectively written and edited by the inaugural members of the PCORnet Rare Diseases Task Force (RDTF). The document was published May 2015. Read more

Rethinking Clinical Trials (R): A Living Textbook of Pragmatic Clinical Trials

Published by Joanna Ball | updated on January 10, 2017

NIH Collaboratory’s Rethinking Clinical Trials: A Living Textbook of Pragmatic Clinical Trials is a resource that provides information about how to understand, design, conduct, analyze & disseminate pragmatic clinical trials (PCTs). If you use materials from the Living Textbook, guidance on proper citation can be found here:   Read more

SMART IRB: One Page Summary

Published by Amanda Schlichte | updated on December 7, 2016

This is a PCORnet one page summary on the SMART IRB. Use this to learn more about SMART IRB. Read more

CENA: Organization Research Inventory Survey

Published by Jordan Capizola | updated on November 28, 2016

This is a template for a research inventory survey. Use it to establish research inventory for your organization. Read more