All Participant Identification and Recruitment & research Resources

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Rare Diseases Task Force Guidance Document

Published by Joanna Ball | updated on May 5, 2017

ThisĀ guidance document is intended for PCORnet-affiliated researchers who are planning or implementing recruitment and retention activities for PCORnet rare disease research cohorts. The document was collectively written and edited by the inaugural members of the PCORnet Rare Diseases Task Force (RDTF). The document was published May 2015. Read more

IAN: Subject Recruitment Application

Published by Jordan Capizola | updated on December 9, 2016

This is the application IAN uses to recruit subjects for its studies. Use it as an example for how to make your own applications. Read more

SMART IRB: Joinder Checklist

Published by Amanda Schlichte | updated on December 7, 2016

This is a Joinder Agreement Informational Sheet. Use this to see what is needed to complete the Joinder process. Read more

CENA: Template for Research Proposal Using PXE International Resources

Published by Jordan Capizola | updated on November 28, 2016

This is PXE International's research proposal template. Use it to shape your research proposal applications. Read more