All Plans and Study Materials Resources

PEDSnet Research Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to find all of PEDSnet's research resources. Here you can find resources to learn more about PEDSnet's IRB, agreements, forms, PI responsibilities, site surveys, and publications. To access all of PEDSnet's resources, please go to https://pedsnet.org/resources/. Read more

PEDSnet IRB/Regulatory Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to find all of PEDSnet's resources surrounding IRB or regulatory policies hosted on their website. Learn more about their policies and programs surrounding their Institutional Review Board. There are resources on human subjects protection, non-human subjects research, site surveys, PI responsibilities, board authorization, and more.   Find all of PEDSnet's resources at https://pedsnet.org/resources/. Read more

PCORnet Bariatric Study Analytic Plan

Published by Joanna Ball | updated on November 13, 2017

Use the PCORnet Bariatric Study's detailed analytic plan to inform the development of your own comprehensive analysis plan. This plan was developed by the Methods Core with feedback from the Scientific Core, Executive Bariatric Stakeholder Advisory Group, and the Clinical Data Research Network (CDRN) Bariatric Principal Investigators. Read more

PCORnet Bariatrics Study Engagement Plan

Published by Joanna Ball | updated on November 13, 2017

View the PCORnet Bariatric Study's Engagement Plan to learn about the study's engagement efforts and inform the development of your own comprehensive engagement plan. Read more

REN: Baseline Questionnaire for Caregiver Responders

Published by Joanna Ball | updated on November 13, 2017

View the Rare Epilepsy Network's (REN) baseline questionnaire designed for caregiver responders and use it to guide the development of your own baseline questionnaire. Read more

Knowledge Repository for Pragmatic Clinical Trials

Published by Joanna Ball | updated on November 13, 2017

A product of the NIH Collaboratory, the Knowledge Repository provides you with access to helpful documents and resources for conducting pragmatic clinical trials. Follow the link to access the tools.   Read more

PRIDEnet: Participant Advisory Committee Bylaws

Published by Jordan Capizola | updated on November 13, 2017

This document was created by PRIDEnet and serves as an example of how a Participant Advisory Committee is supposed to function. Use this document as an example when creating your own bylaws.   Read more

IAN: Community Advisory Council Summary

Published by Jordan Capizola | updated on November 7, 2017

This is a summary of what IAN's Community Advisory Council is. Use it to learn more about the Council. Read more

IAN: Community Advisory Council Charter

Published by Jordan Capizola | updated on November 7, 2017

This is IAN's charter for its Community Advisory Council. Use it to learn more about IAN. Read more

PCORnet Data Sharing Agreement

Published by Amanda Schlichte | updated on November 7, 2017

This is the PCORnet Data Sharing Agreement. Use it to learn more about the standard terms to which the PCORnet Coordinating Center will adhere when information/data are sent from the Network Partners to the Coordinating Center. Read more