All Participant Identification and Recruitment Resources

Strategies to Increase Inclusiveness

Published by Joanna Ball | updated on October 2, 2017

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more

Eureka Digital Research Platform

Published by Joanna Ball | updated on July 18, 2017

This resource provides background information about the Eureka Digital Research Platform developed by the Health eHeart Alliance. Eureka was built by Health eHeart Alliance researchers from the University of California San Francisco and sponsored by the NIH. The platform is available to anyone who wants to conduct medical or health-related human subject-based research, including citizen-scientists, NIH investigators, university or other non-profit investigators, industry investigators or others. Read more

Rare Diseases Task Force Guidance Document

Published by Joanna Ball | updated on May 5, 2017

This guidance document is intended for PCORnet-affiliated researchers who are planning or implementing recruitment and retention activities for PCORnet rare disease research cohorts. The document was collectively written and edited by the inaugural members of the PCORnet Rare Diseases Task Force (RDTF). The document was published May 2015. Read more

IAN: Subject Recruitment Application

Published by Jordan Capizola | updated on August 7, 2017

This is the application IAN uses to recruit subjects for its studies. Use it as an example for how to make your own applications. Read more

SMART IRB: Joinder Checklist

Published by Amanda Schlichte | updated on August 7, 2017

This is a Joinder Agreement Informational Sheet. Use this to see what is needed to complete the Joinder process. Read more

CENA: Template for Research Proposal Using PXE International Resources

Published by Jordan Capizola | updated on August 7, 2017

This is PXE International's research proposal template. Use it to shape your research proposal applications. Read more

CENA: Research Proposal Form JSRDF

Published by Jordan Capizola | updated on August 7, 2017

This is a research proposal form template. Use it to help draft a form for your study. Read more

NephCure Kidney Network: Patient Registry Informed Consent

Published by Jordan Capizola | updated on August 7, 2017

This is an example of an Informed Consent agreement from NephCure Kidney Network. The document explains the risks and benefits of participating in research studies and lists the participant's rights. Use this as an example for creating an Informed Consent form. Read more

CENA: So You Want to Get on MOSAIC?

Published by Jordan Capizola | updated on August 7, 2017

This is a checklist for those interested in joining Mosaic. Use this to plan for a successful Mosaic-based project. Read more

PARTNERS: June 2016 Research Collaboration Intake Form

Published by Jordan Capizola | updated on August 7, 2017

This in-take form from PARTNERS PPRN is used for requesting information from PARTNERS for use in research studies. Use it as a template for your research study. Read more