All Participant Identification and Recruitment Resources

PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 2: Best Practices

Published by Adrianna Evans | updated on November 30, 2017

This presentation, originally recorded on, November 13, 2017, looked at e-consent from several different perspectives. The presentation discussed different technologies used to obtain consent in different contexts. It detail different guidelines as well as use of layered consent. Speakers: Dr. Holly Peay, RTI Dr. Erin Rothwell, University of Utah David Borasky, WIRB-Copernicus Group   [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/11/2017-11-13-PCORnet-BPSS_Recording.mp4"][/video]   Read more

Best Practice Sharing Session: Pragmatic Trial App Suite: Supporting Patient Engagement Trial Recruitment and More

Published by Jordan Capizola | updated on November 13, 2017

This presentation helped answer the question, "How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?" Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Speaker: Dr. Tom Carton, REACHnet Final LaCDRN Best Practices Presentation Presented on May 6, 2015 Read more

Best Practice Sharing Session: Telemedicine for remote electronic informed consent

Published by Adrianna Evans | updated on November 13, 2017

This presentation, originally hosted on May 12, 2015, introduces doxy.me. This platform can be used to obtain informed consent online, from a remote location. Speakers: Dr. Brandon Welch   BPSS Telemedicine for Remote Electronic Informed consent Read more

Strategies to Increase Inclusiveness

Published by Joanna Ball | updated on November 13, 2017

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more

Eureka Digital Research Platform

Published by Joanna Ball | updated on November 13, 2017

This resource provides background information about the Eureka Digital Research Platform developed by the Health eHeart Alliance. Eureka was built by Health eHeart Alliance researchers from the University of California San Francisco and sponsored by the NIH. The platform is available to anyone who wants to conduct medical or health-related human subject-based research, including citizen-scientists, NIH investigators, university or other non-profit investigators, industry investigators or others. Read more

Rare Diseases Task Force Guidance Document

Published by Joanna Ball | updated on November 13, 2017

This guidance document is intended for PCORnet-affiliated researchers who are planning or implementing recruitment and retention activities for PCORnet rare disease research cohorts. The document was collectively written and edited by the inaugural members of the PCORnet Rare Diseases Task Force (RDTF). The document was published May 2015. Read more

IAN: Subject Recruitment Application

Published by Jordan Capizola | updated on November 7, 2017

This is the application IAN uses to recruit subjects for its studies. Use it as an example for how to make your own applications. Read more

SMART IRB: Joinder Checklist

Published by Amanda Schlichte | updated on November 7, 2017

This is a Joinder Agreement Informational Sheet. Use this to see what is needed to complete the Joinder process. Read more

CENA: Template for Research Proposal Using PXE International Resources

Published by Jordan Capizola | updated on November 7, 2017

This is PXE International's research proposal template. Use it to shape your research proposal applications. Read more

CENA: Research Proposal Form JSRDF

Published by Jordan Capizola | updated on November 7, 2017

This is a research proposal form template. Use it to help draft a form for your study. Read more