All Engagement Resources

Initiative to Support Patient Involvement in Research (INSPIRE): Online Research Portal

Published by Joanna Ball | updated on November 13, 2017

The recently launched INSPIRE Research Portal is an online library of resources designed for patients and researchers partnering on patient-centered outcomes research (PCOR), healthcare studies that actively engage patients in the research process from start to finish.  The portal includes resources for patients and researchers to use together, as well as those specific to each group. Look through the portal to find novel ways to make the research process more inclusive.  Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Community Workshop Report

Published by Joanna Ball | updated on November 13, 2017

The attached Initiative to Support Patient Involvement in Research (INSPIRE): Community Workshop Report presents the four learning sessions in a community workshop held July 18 and 19, 2016, in Seattle. The workshop brought together patients and researchers who are partnering on research studies throughout the Pacific Northwest. The purpose was to advance learning about effective patient-researcher partnerships and to discuss and prioritize gaps in tools, resources and training needed to support patient-researcher partnerships in patient-centered outcomes research (PCOR). This report includes the emerging ideas and themes generated from each group discussion and concludes with a report on the workshop evaluation... Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Findings from Phase I Interviews (2016)

Published by Joanna Ball | updated on November 13, 2017

The attached Initiative to Support Patient Involvement in Research (INSPIRE): Findings from Phase I Interviews (2016) contains results from interviews of 23 researchers and 14 patient/family partners partnering on 23 Patient-Centered Outcomes Research Institute (PCORI)-funded projects in the Pacific Northwest. This report includes important findings on what makes partnerships successful as well as what is still needed in terms of training and support. Read more

Network Overview Presentation Template

Published by Joanna Ball | updated on November 13, 2017

Use this template to guide the creation of an overview presentation about your network or organization. Read more

Outreach Plan and Checklist Template

Published by Joanna Ball | updated on November 13, 2017

Outreach encompasses all the ways your organization involves and educates your community about relevant programs or services available. Use this document to guide the creation of an outreach plan that will help you meaningfully connect with your key stakeholders. Read more

Best Practice Sharing Session: ABOUT Network GAP Tools

Published by Joanna Ball | updated on November 13, 2017

ABOUT Network’s GAP 360 and GAP Tools process is a 7-step process for patient-centered research. Dr. Sue Friedman describes the GAP Tool process and discusses how hereditary cancer research gaps are identified through its use. Download the slide deck above (click “Download Resource”), or view the presentation. Read more

PaTH to Health Diabetes Study: Post Cards and Digital Newsletters

Published by Joanna Ball | updated on November 13, 2017

The "sneak peek" postcards are distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH's free bi-annual digital newsletter and feature a QR code that links directly to the newsletter. Use the postcards and newsletters below to help develop and create marketing materials for your organization. Promotional Postcards PaTH to Health Diabetes Postcard (promo for 2017 Winter/Spring newsletter) PaTH to Health Diabetes Postcard (promo for 2017 Summer/Fall newsletter) Newsletters 2017 Winter/Spring digital newsletter 2017 Summer/Fall digital newsletter    Read more

Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal from The Alzheimer’s PPRN

Published by Joanna Ball | updated on November 13, 2017

The Alzheimer’s PPRN describes their use of the Brain Health Registry Caregiver and Study Partner Portal in this PCORnet Best Practice Sharing Session. The online tool facilitates people-centered health research by assisting with recruitment, engagement, assessment, and education of caregivers. Dr. Michael W. Weiner, MD, Dr. Ronald C. Petersen, MD, PhD and Dr. Rachel L. Nosheny, PhD discuss the data collected using the Caregiver Portal and its potential impact on dementia research as well as ways the portal can be used to engage caregivers and study partners within and outside the PCORnet community. Download the slide deck above (click the "Download... Read more

REACHnet: Health in our Hands Clinic Manual

Published by Joanna Ball | updated on November 13, 2017

This document provides an understanding of REACHnet's Health in Our Hands initiative. Health in our Hands provides a way for patients to get involved in all aspects of the research process and acts as a connecting point for researchers and patients. This manual can be used to guide the creation of your own engagement materials and initiatives. Read more

Best Practice Sharing Session: Transformational Approaches to Achieving Health Equity through Engaged Research

Published by Joanna Ball | updated on November 13, 2017

These slides are from Dr. Consuelo H. Wilkins’ webinar presentation where she examines components of diversity and provides a review of engaged research approaches needed to address disparities. Dr. Wilkins is PI of the Vanderbilt-Miami-Meharry Center of Excellence in Precision Medicine and Population Health. Read more