All Engagement Resources

DuchenneConnect Clinical Trials Whiteboard Video

Published by Adrianna Evans | updated on November 13, 2017

Click here to view DuchenneConnect's Clinical Trials Introductory Video. This video is a whiteboard video and can be used to learn more about some basics on clinical trials or as an example of an outreach video. Read more

Obesity Antibiotics Study: Advancing the Science of Community Engaged Research

Published by Joanna Ball | updated on November 13, 2017

The engagement leadership team of the PCORnet Antibiotics Study surveyed the Executive Antibiotics Stakeholder Advisory Group (EASAG) regarding their participation and engagement in the study. The study explores the effects of antibiotic use during the first two years of life on BMI at ages 5 and 10. The goals of this survey were to determine stakeholder satisfaction; inform the study’s engagement process, and document lessons learned to benefit future studies. Its findings will be used to inform stakeholder inclusion in scientific studies, sustain engagement, and enhance future PCORnet stakeholder engagement. This poster was presented at the Advancing the Science of... Read more

Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community provides opportunities for interaction within and outside of PCORnet. Dr. Tom Carton, Chief Development Officer for the Louisiana Public Health Institute and Principal Investigator of REACHnet and Joanna Ball, Digital Community Manager for PCORnet Commons, show users can leverage the PCORnet Commons to turn their innovative ideas into tangible solutions and discussed the potential for using the Commons to further facilitate collaborations between PCORnet and NCATS (and beyond). PCORnet BPSS... Read more

PEDSnet Engagement Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to find all of PEDSnet's resources surrounding engagement. Here you can find information on PEDSnet's engagement policies, human subjects protections, and stakeholder publications. To view all of PEDSnet's resources, please go to https://pedsnet.org/resources/. Read more

PEDSnet Communications Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to view PEDSnet's communications resources hosted on their website. Here you can read their archived newsletters as well as look at their infographics and presentations. To view all of PEDSnet's resources, go to https://pedsnet.org/resources/. Read more

PEDSnet Governance

Published by Adrianna Evans | updated on November 13, 2017

Click here to view all PEDSnet Governance resources hosted on the PEDSnet website. Use these resources to learn about policies on topics such as organizational architecture, decision making and voting, data networks, patient and stakeholder engagement, conflict of interest, data security, and more! Find all of PEDSnet's resources at https://pedsnet.org/resources/. Read more

PCORnet Bariatric Study: Smart Patients Weight Management Brochure

Published by Adrianna Evans | updated on November 13, 2017

Use this brochure to learn about Smart Patient's online community or as a template for dissemination brochures. Read more

PCORnet Bariatric Study: Smart Patients Dissemination Packet

Published by Adrianna Evans | updated on November 13, 2017

View the PCORnet Bariatric Study's Dissemination packet to learn about how they engaged providers and patients. Read more

Best Practice Sharing Session: Stakeholder Contributions to Scientific Manuscripts and a Web-Based Platform for Engaging and Connecting Patients & Caregivers

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Bariatric Study (PBS) team shares their approach to meaningfully including stakeholders in their study. Specifically, the team discusses their manuscript development process and how they leveraged Smart Patients - an existing online patient community platform. To continue the dialogue about stakeholder engagement in your research and practice, follow the Commons Community Conversations forum. Presentation materials are below. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/08/2017-08-29-PCORnet-BPSS_Recording.mp4"][/video] Read more

PCORnet Bariatrics Study Engagement Plan

Published by Joanna Ball | updated on November 13, 2017

View the PCORnet Bariatric Study's Engagement Plan to learn about the study's engagement efforts and inform the development of your own comprehensive engagement plan. Read more