All Engagement Resources

Best Practice Sharing Session: OneFlorida CDRN

Published by Adrianna Evans | updated on November 13, 2017

OneFlorida is one of PCORnet's CDRN's focusing on implementation studies focused on evidence-based intervntions, pragmatic trials, and examination of treatment effects among diverse populations in Florida. This webinar, originally held on January 15th, 2015, can be used to learn more about them and their programs. Speakers: Dr. Elizabeth Shenkman, OneFlorida CDRN Dr. William Hogan, OneFlorida CDRN OneFlorida Overview 01 15 2016 FINAL Read more

Best Practice Sharing Session LHSnet CDRN and ADPCPRN

Published by Adrianna Evans | updated on November 13, 2017

Learning Health Systems create a cycle for continuous improvement and innovation. This webinar, originally hosted on January 20th, 2016, is an opportunity to learn both about LHSnet and the ADPCPRN. Speakers: Dr. Veronique Roger, LHSnet Dr. Glenn Smith, ADPCPRN Alzheimers PPRN and LHSNet presentation 1-2016   Read more

Best Practice Sharing Session: Interactive Autism Network PPRN

Published by Adrianna Evans | updated on November 13, 2017

The Interactive Autism Network (IAN) is one of PCORnet's PPRNs. This webinar, hosted on January 25th, 2016, will help inform you about IAN as a network and their work. Peruse this presentation to learn some new details about IAN. Speakers: Dr. Paul H. Lipkin, Interactive Autism Network Cheryl Cohen, Interactive Autism Network Dr. J. Kiely Law, Interactive Autism Network IAN_PCORnet_Introduction 2016_FINAL     Read more

Best Practice Sharing Session: PRIDEnet

Published by Adrianna Evans | updated on November 13, 2017

PRIDEnet is a PPRN centered around Sexual and Gender Minorities as they are understudied, underserved, and vulnerable. This webinar, originally hosted on February 16th, 2016 introduces PRIDEnet, their population, and the PRIDE Study. This is an opportunity to learn more about this PPRN. Speaker: Dr. Juno Obedin-Maliver, University of California, San Francisco PCORnetBestPractices_PRIDEnet_Obedin-Maliver_17FEB16_FINAL-min Read more

Best Practice Sharing Session: Kaiser Permanente

Published by Adrianna Evans | updated on November 13, 2017

Social media is a powerful tool that can be harnessed to reach out to diverse communities. This webinar, hosted July 20th, 2016, discusses how to reach stakeholders through social media. This presentation provides information on the Colorado Patient Partners in Research (CoPPiR) Network and their use of social media. Speakers: Sarah Madrid, Kaiser Permanente Colorado Dr. Susan Moore, Denver Health and Hospital Authority 2016.07.20 Best Practices KPCO DH CoPPiR(1) Read more

Best Practice Sharing Session: Becoming a Brand Ambassador for PCORnet

Published by Adrianna Evans | updated on November 13, 2017

Being a Brand Ambassador for PCORnet means that you help to communicate PCORnet's mission and work to the larger public. This webinar, hosted on November 3rd, 2016, will show you how to be an effective Brand Ambassador to PCORnet. The presentation will also point you to several useful communication resources you can use when discussing PCORnet. Download the slides here. Speakers: Lindsay Singler, Duke Clinical Research Institute (DCRI) Julie Schulman, Duke Clinical Research Institute (DCRI) Jennifer Cook, Duke Clinical Research Institute (DCRI) [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/10/2016-11-03-Becoming-a-Brand-Amabassador-for-PCORnet.mp4"][/video] Read more

PCORnet Bariatric Study: Scientific Writing Lay Guide

Published by Joanna Ball | updated on November 13, 2017

This scientific writing lay guide was developed by the PCORnet Bariatric Study (PBS). The guide provides an overview of the general scientific manuscript writing process, including International Committee of Medical Journal Editors (ICJME) criteria guidelines, journal submission, and the specific process used in PBS. The guide can be shared with non-scientific stakeholders and revised to reflect the writing process in your study. If you have questions about this guide, please contact: Kathleen McTigue (kmm34@pitt.edu) Karen Coleman (J.Coleman@kp.org) Published June 2017 Read more

Stakeholder Feedback Survey Template

Published by Joanna Ball | updated on November 13, 2017

Use this survey template to guide the development of a tool to evaluate patient/participant engagement in your networks' research studies. Author(s): The Executive Antibiotics Stakeholder Advisory Group and the Engagement Leadership Core Published October 2017 Read more

Collecting Community Stories: The MyPaTH Story Booth Toolkit

Published by Joanna Ball | updated on November 13, 2017

This toolkit is designed to help you collect rich and meaningful stories from your community. The MyPaTH’s Story Booth materials in this toolkit include sample flyers, brochures, and interview prompts that can be adapted to your community with approval from the MyPaTH Story Booth IRB. Begin collecting and archiving your community’s stories in partnership with the MyPaTH Story Booth team! Want to learn more about the Story Booth Project? Visit the MyPaTH Story Booth website Listen to the PCORnet Best Practice Sharing Session about the MyPath Story Booth Published October 2017 Read more

Wisconsin Network for Research Support (WINRS): Hard-to-Reach Patient Stakeholders: An Engagement Guide

Published by Joanna Ball | updated on November 13, 2017

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a toolkit for researchers and others who want to engage hard-to-reach stakeholders for patient-centered projects, including patient-centered outcomes research (PCOR). The toolkit was developed by the Wisconsin Network for Research Support (WINRS), a patient and community engagement resource based at the University of Wisconsin-Madison School of Nursing. The toolkit includes templates that researchers can adapt for specific projects, including a form to help researchers respectfully contact a community-based organization about collaboration on a research project. Important Information: HARPS is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. If you use or adapt... Read more