All Engagement Resources

PEDSnet Communications Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to view PEDSnet's communications resources hosted on their website. Here you can read their archived newsletters as well as look at their infographics and presentations. To view all of PEDSnet's resources, go to https://pedsnet.org/resources/. Read more

PEDSnet Governance

Published by Adrianna Evans | updated on November 13, 2017

Click here to view all PEDSnet Governance resources hosted on the PEDSnet website. Use these resources to learn about policies on topics such as organizational architecture, decision making and voting, data networks, patient and stakeholder engagement, conflict of interest, data security, and more! Find all of PEDSnet's resources at https://pedsnet.org/resources/. Read more

PCORnet Bariatric Study: Smart Patients Weight Management Brochure

Published by Adrianna Evans | updated on November 13, 2017

Use this brochure to learn about Smart Patient's online community or as a template for dissemination brochures. Read more

PCORnet Bariatric Study: Smart Patients Dissemination Packet

Published by Adrianna Evans | updated on November 13, 2017

View the PCORnet Bariatric Study's Dissemination packet to learn about how they engaged providers and patients. Read more

Best Practice Sharing Session: Stakeholder Contributions to Scientific Manuscripts and a Web-Based Platform for Engaging and Connecting Patients & Caregivers

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Bariatric Study (PBS) team shares their approach to meaningfully including stakeholders in their study. Specifically, the team discusses their manuscript development process and how they leveraged Smart Patients - an existing online patient community platform. To continue the dialogue about stakeholder engagement in your research and practice, follow the Commons Community Conversations forum. Presentation materials are below. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/08/2017-08-29-PCORnet-BPSS_Recording.mp4"][/video] Read more

PCORnet Bariatrics Study Engagement Plan

Published by Joanna Ball | updated on November 13, 2017

View the PCORnet Bariatric Study's Engagement Plan to learn about the study's engagement efforts and inform the development of your own comprehensive engagement plan. Read more

External Engagement Resources and Articles

Published by Joanna Ball | updated on November 13, 2017

Publication Title Author(s) Network for Excellence in Health Innovation Transparency in Health Care: A Priority Roadmap for Consumer Engagement  Caroline R. Steinberg, Vice President of Programs, NEHI Susan Dentzer, President and CEO, NEHI Therapeutic Innovation & Regulatory Science Assessing the Financial Value of Patient Engagement: A Quantitative Approach from CTTI’s Patient Groups and Clinical Trials Project Bennett Levitan, MD, PhD Kenneth Getz, MBA, Eric L. Eisenstein, DBA, Michelle Goldberg, MBA, Matthew Harker, MPH, MBA, Sharon Hesterlee, PhD, Bray Patrick-Lake, MFS, Jamie N. Roberts, MPH, MA, and Joseph DiMasi, PhD New England Journal of Medicine Catalyst Insights Council's report: Analysis of the fourth NEJM Catalyst... Read more

How To Sign Up for a PCORnet Commons Account

Published by Joanna Ball | updated on November 13, 2017

Download this step-by-step guide and learn how to create your PCORnet Commons account. Read more

How-To Get Started with Commons Groups

Published by Joanna Ball | updated on November 13, 2017

This video tutorial walks you through the steps to set up a PCORnet Commons Group. In addition, we have created a helpful infographic to accompany the video tutorial.   Getting Started with Group: A PCORnet Commons Tutorial from Joanna Ball on Vimeo. Read more

How To Submit a Resource on the Commons

Published by Joanna Ball | updated on November 13, 2017

Follow the steps in this easy-to-use infographic to submit your resources to the PCORnet Commons. Read more