All Engagement Resources

IBD Partners: Principles for Patient Collaboration V1

Published by Joanna Ball | updated on December 8, 2017

This resource was created by the IDB Partners Patient Governance Committee and intended to be given to investigators at the beginning of a project to help facilitate an open dialog with the patient collaborator(s). Use this to develop your own principles for effective stakeholder communication. Author(s): IDB Partners Patient Governance Committee Published: November 1, 2017 Read more

Best Practice Sharing Session: Pragmatic Trial App Suite: Supporting Patient Engagement Trial Recruitment and More

Published by Jordan Capizola | updated on November 13, 2017

This presentation helped answer the question, "How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?" Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Speaker: Dr. Tom Carton, REACHnet Final LaCDRN Best Practices Presentation Presented on May 6, 2015 Read more

Best Practice Sharing Session: Clinician Engagement

Published by Adrianna Evans | updated on November 13, 2017

Engaging clinicians in research comes with many challenges, but there are also many key solutions. This presentation, hosted both on May 20th and May 21st, 2015 outlines these aspects and steps to engaging clinicians throughout the research process. Speakers: Dr. Robert Mentz, Duke University Dr. Matthew Roe, Duke University PCORnet Clinician Engagement Read more

Best Practice Sharing Session: Engagement of Multiple Stakeholder Groups

Published by Adrianna Evans | updated on November 13, 2017

LaCDRN discusses their approaches to engaging multiple stakeholder groups. In this webinar, originally hosted on June 23, 2015, you can learn about LaCDRN's structure and how they integrate the voices of different groups within that structure. Speakers: Dr. Rebekah Angrove, LaCDRN Sarah Pallin, LaCDRN [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/11/PCORnet-BPSS-LaCDRN-Engaging-Multi-Stakeholder-Groups.mp4"][/video] Read more

Best Practice Sharing Session: CDRN – PPRN Collaborations

Published by Adrianna Evans | updated on November 13, 2017

Collaborations across networks are an essential part of PCORnet. This webinar, originally hosted on September 29th, 2015 describes ways to collaborate between CDRNs and PPRNs. If you are interested in establishing such a relationship, please take a look at this session. Speakers: Dr. Russell Rothman, Mid-South CDRN Dr. Jeff Curtis, AR-POWER Dr. Ben Nowell, AR-POWER Dr. Michael Kappelman, CCFA PPRN   CDRN PPRN Collaborations _Final_DML Read more

Best Practice Sharing Session: Health eHeart Alliance PPRN

Published by Adrianna Evans | updated on November 13, 2017

Health eHeart is one of PCORnet's many PPRNs. This PPRN is focused on cardiovascular health. This webinar, originally hosted on October 20th, 2015, can be used to learn more about this PPRN. Speakers: Madelaine Faulkner, Health eHeart Alliance [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/10/PCORnet-BPSS-HeH-multi-stakeholder-egnagement.mp4"][/video] Read more

Best Practice Sharing Session: OneFlorida CDRN

Published by Adrianna Evans | updated on November 13, 2017

OneFlorida is one of PCORnet's CDRN's focusing on implementation studies focused on evidence-based intervntions, pragmatic trials, and examination of treatment effects among diverse populations in Florida. This webinar, originally held on January 15th, 2015, can be used to learn more about them and their programs. Speakers: Dr. Elizabeth Shenkman, OneFlorida CDRN Dr. William Hogan, OneFlorida CDRN OneFlorida Overview 01 15 2016 FINAL Read more

Best Practice Sharing Session LHSnet CDRN and ADPCPRN

Published by Adrianna Evans | updated on November 13, 2017

Learning Health Systems create a cycle for continuous improvement and innovation. This webinar, originally hosted on January 20th, 2016, is an opportunity to learn both about LHSnet and the ADPCPRN. Speakers: Dr. Veronique Roger, LHSnet Dr. Glenn Smith, ADPCPRN Alzheimers PPRN and LHSNet presentation 1-2016   Read more

Best Practice Sharing Session: Interactive Autism Network PPRN

Published by Adrianna Evans | updated on November 13, 2017

The Interactive Autism Network (IAN) is one of PCORnet's PPRNs. This webinar, hosted on January 25th, 2016, will help inform you about IAN as a network and their work. Peruse this presentation to learn some new details about IAN. Speakers: Dr. Paul H. Lipkin, Interactive Autism Network Cheryl Cohen, Interactive Autism Network Dr. J. Kiely Law, Interactive Autism Network IAN_PCORnet_Introduction 2016_FINAL     Read more

Best Practice Sharing Session: PRIDEnet

Published by Adrianna Evans | updated on November 13, 2017

PRIDEnet is a PPRN centered around Sexual and Gender Minorities as they are understudied, underserved, and vulnerable. This webinar, originally hosted on February 16th, 2016 introduces PRIDEnet, their population, and the PRIDE Study. This is an opportunity to learn more about this PPRN. Speaker: Dr. Juno Obedin-Maliver, University of California, San Francisco PCORnetBestPractices_PRIDEnet_Obedin-Maliver_17FEB16_FINAL-min Read more