All Dissemination Resources

PRIDEnet: 2017 Annual Questionnaire

Published by Jordan Capizola | updated on February 6, 2018

“2017 Annual Questionnaire” is our current, live Annual Questionnaire for The PRIDE Study. It was developed by our Research Advisory Committee (Drs. Obedin-Maliver, Lunn, Annesa Flentje, Matthew Capriotti, Micah Lubensky). It is based primarily on many published scales and pre-existing questionnaires, but also includes some novel questions created by our Research Advisory Committee. It is definitely informed by feedback from our pilot research (~18,000 enrolled participants), including types of health information collected, and research question language and composition. Read more

PRIDEnet: Sociodemographic Characteristics and Health Outcomes Among Lesbian, Gay, and Bisexual U.S. Adults Using Healthy People 2020 Leading Health Indicators

Published by Jordan Capizola | updated on February 1, 2018

"Sociodemographic Characteristics and Health Outcomes Among Lesbian, Gay, and Bisexual U.S. Adults Using Healthy People 2020 Leading Health Indicators" is a refereed journal publication written in collaboration by PRIDEnet PI, Dr. Mitchell Lunn (@mitchlunn) and others. It references  The PRIDE Study and PRIDEnet's relationship with PCORI. Published: 2017 LGBT Health,  Volume 4, Number 4 Authors: Mitchell R. Lunn, MD, MAS,1–3 Wanjun Cui, PhD, MS,4 Matthew M. Zack, MD, MPH,4 William W. Thompson, PhD,5 Michael B. Blank, PhD,6–8 and Baligh R. Yehia, MD, MPP, MSc9,10 DOI: 10.1089/lgbt.2016.0087   Read more

PRIDEnet: Assessing Sexual Orientation and Gender Identity for Research

Published by Jordan Capizola | updated on February 6, 2018

“Assessing Sexual Orientation and Gender Identity for Research” was developed by co-directors Dr. Juno Obedin-Maliver and Dr. Mitchell Lunn, based on clinical and research expertise, and was informed by participant data in our pilot research (~18,000 enrolled participants). Read more

Strategies for Effective Dissemination

Published by Joanna Ball | updated on November 13, 2017

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PRIDEnet: Recommendations for Research Dissemination

Published by Joanna Ball | updated on November 13, 2017

The dissemination recommendations were developed in partnership with the Center for AIDS Prevention Studies (CAPS) Community Advisory Board (CAB) drawing from their own experiences and from interviews with researchers. Published Spring 2013 Read more

Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community provides opportunities for interaction within and outside of PCORnet. Dr. Tom Carton, Chief Development Officer for the Louisiana Public Health Institute and Principal Investigator of REACHnet and Joanna Ball, Digital Community Manager for PCORnet Commons, show users can leverage the PCORnet Commons to turn their innovative ideas into tangible solutions and discussed the potential for using the Commons to further facilitate collaborations between PCORnet and NCATS (and beyond). PCORnet BPSS... Read more

NIH: Clinical Trial Requirements for Grants and Contracts

Published by Joanna Ball | updated on August 30, 2017

From the National Institutes of Health Website: "NIH is launching a series of initiatives that are rolling out in 2017-2018 to enhance the accountability and transparency of clinical research. These initiatives target key points along the whole clinical trial lifecycle from concept to results reporting. Learn more about these changes and how they will affect your research." Read more

GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

Published by Joanna Ball | updated on November 13, 2017

This open access article was published in the British Medical Journal on 2 August 2017: "This paper describes the development of the GRIPP2 reporting checklists, which aim to improve the quality, transparency, and consistency of the international patient and public involvement (PPI) evidence base, to ensure that PPI practice is based on the best evidence." Read more

Plain Language Principles Infographic

Published by Joanna Ball | updated on January 11, 2018

This infographic is focused on health literacy and using plain language in health research communications. Use these principles to help guide the creation of content that is easy to access and understand by a variety of audiences. Read more

Writing for the Clinical Research Setting

Published by Joanna Ball | updated on November 13, 2017

View a collection of webinars presented by Jonathan McCall, MS, the Managing Editor for Rethinking Clinical Trials and a senior science writer and editor for the Duke Clinical Research Institute. Each webinar provides an introduction to a particular aspect of writing for the clinical research space including: Writing peer-reviewed articles White papers Guidance documents Managing the writing and publication process Read more