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Best Practice Sharing Session: Design and Development of an Operational Privacy Protecting Record Linkage Tool

Published by Jordan Capizola | updated on November 13, 2017

Dr. Kho discussed how to protect and secure data online. He also explained the ongoing work to develop new security features. Speaker: Dr. Abel Kho, CAPriCORN PCORnet_Best_Practices_4_29_15 Presented on April 29, 2015 Read more

Best Practice Sharing Session: Creative Commons; Extending the Value of PCORnet Efforts

Published by Jordan Capizola | updated on November 13, 2017

This presentation goes over the differences between intellectual property and data, Open Access, attributions, and CC licenses. Speaker: John Wilbanks pcori cc wilbanks ppt Presented on January 26, 2015 Read more

Best Practice Sharing Session: Multi-center Chronic Disease Registries

Published by Adrianna Evans | updated on November 13, 2017

This webinar, originally hosted on July 8th, 2015, addresses the future of multi-center chronic disease registries in a learning health system. Simply, a registry is a defined set of data collected on a defined cohort of patients. Registries of chronic disease patients can be used to inform the development of a learning health system. Watch the presentation below to find out more. Speakers: Dr. Keith Marsolo, Cincinnati Children's Hospital Medical Center [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/11/PCORnet-BPSS-Multi-Center-Chronic-Disease-Registries.mp4"][/video] Read more

The Greater Plains Collaborative Governance Materials (Public Wiki)

Published by Joanna Ball | updated on November 13, 2017

The Greater Plains Collaborative Governance Materials Public Wiki includes information in support of data sharing, governance, and IRB processes. Read more