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EHR Implementation Guide V.1

Published by Joanna Ball | updated on November 30, 2017

The PCORnet EHR-extraction pilot project is underway with three PPRNs (Interactive Autism Network, NephCure Kidney Network, and Phelan McDermid Syndrome Data Network) to acquire electronic health record (EHR) data from network participants for the purposes of research. This implementation guide outlines the steps and resources necessary for an organization to begin acquiring structured EHR data through participant use of a proxy-based application, with the purpose of  describing the technical components, tasks, resources, management approach, and schedule used to complete the PCORnet EHR-extraction pilot project. Author(s): EHR Pilot Team Published November 2017 Read more

Best Practice Sharing Session: Design and Development of an Operational Privacy Protecting Record Linkage Tool

Published by Jordan Capizola | updated on November 13, 2017

Dr. Kho discussed how to protect and secure data online. He also explained the ongoing work to develop new security features. Speaker: Dr. Abel Kho, CAPriCORN PCORnet_Best_Practices_4_29_15 Presented on April 29, 2015 Read more

Best Practice Sharing Session: Statistical Analyses in Distributed Research Networks

Published by Jordan Capizola | updated on November 13, 2017

Dr. Toh and Dr. Li gave examples of research conducted within distributed networks with horizontally partitioned data. They then hosted a discussion and spoke about how vertically partitioned data could be useful to PCORnet. Speakers: Dr. Darren Toh, Harvard Medical School/Harvard Pilgrim Health Care Institute Dr. Lingling Li, Harvard Medical School/Harvard Pilgrim Health Care Institute Statistical analyses in distributed research networks Presented on March 16, 2015 Read more

Best Practice Sharing Session: Data Quality Assessment in Collaborative CDRNs

Published by Adrianna Evans | updated on November 13, 2017

Data quality is a common problem in EHR data. This webinar, originally hosted on May 27, 2015, discusses what data quality issues should be prevented when creating CDRNs for comparative effectiveness research. Speakers: Dr. Chunhua Weng, Columbia University BPSS Data quality assessment in CDRNs Read more