All Data Capture, Integration, and Linkage & data Resources

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REN: Baseline Questionnaire for Caregiver Responders

Published by Joanna Ball | updated on May 9, 2017

View the Rare Epilepsy Network's (REN) baseline questionnaire designed for caregiver responders and use it to guide the development of your own baseline questionnaire. Read more

PCORnet Data Sharing Agreement (DSA) 2.0

Published by Joanna Ball | updated on May 12, 2017

The National Patient-Centered Clinical Research Network (PCORnet) released version 2.0 of the PCORnet DSA on May 5, 2017.*  The DSA defines the standard terms that govern the sharing of information/data and its transfer from participating Network Data Affiliates to the PCORnet Coordinating Centers, Harvard Pilgrim Health Care Institute (HPHCI) and Duke University (Duke) (singularly or together, “the PCORnet CC”). By executing the DSA by and amongst the PCORnet Network Data Affiliates, HPHCI, and Duke as a three-party agreement, it covers four types of data sharing that could occur, broadly defined as those to support: 1) data completeness/data characterization activities; 2) analytic queries... Read more

Best Practice Sharing Session: Measuring an Epidemic: Using EHR Data to Track Trends in Opioid Prescribing

Published by Joanna Ball | updated on May 9, 2017

Speakers John Muench, MD, MPH and Thuy Le, MPH, both of OCHIN discuss the liberalizing of chronic opioid prescribing in the 90s was soon followed by unforeseen harm to individuals and communities. Muench and Le review the history of the rise in opioid addiction and overdose deaths,  prior efforts to track pain medication prescriptions, and current efforts to organize the ADVANCE Clinical Data Research Network electronic health record data to more easily describe prescribing pattern changes that follow interventions at national, state, and clinic levels. Download the presentation slides above and listen to the recorded webinar on PCORnet.org. Read more

Cross-Network Code Repository

Published by Joanna Ball | updated on April 13, 2017

These resources have been shared by various PCORnet Networks to foster cross-collaboration.  Greater Plains Collaborative code resources:  TRAC Wiki: https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams Github: https://github.com/kumc-bmi Bitbucket: https://bitbucket.org/MCW_BMI/unstructured-notes-deidentification Known code branches for PCORnet across CDRNs: Github: https://github.com/PCORnet/DataCommittee/wiki/Community Read more