All Data Capture, Integration, and Linkage & data Resources

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Cross-Network Code Repository

Published by Joanna Ball | updated on April 13, 2017

These resources have been shared by various PCORnet Networks to foster cross-collaboration.  Greater Plains Collaborative code resources:  TRAC Wiki: https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams Github: https://github.com/kumc-bmi Bitbucket: https://bitbucket.org/MCW_BMI/unstructured-notes-deidentification Known code branches for PCORnet across CDRNs: Github: https://github.com/PCORnet/DataCommittee/wiki/Community Read more

Protecting Privacy in the PCORnet Distributed Research Network

Published by Joanna Ball | updated on February 13, 2017

The Technical Approaches for Protecting Privacy in the PCORnet Distributed Research Network V1.0 document was prepared by the PCORnet Data Privacy Task Force and provides examples of ways to reduce the risk of re-identification with respect to the generation, collection, maintenance, or return of Network Data. Read more

NephCure Kidney Network: Data Use Agreement

Published by Jordan Capizola | updated on November 28, 2016

This Data Use Agreement from NephCure Kidney Network gives an example of what should be included in such an agreement. Use this as a template to make Data Use Agreement and Data Use Acknowledgment forms. Read more

NephCure Kidney Network: Public Use Data Dictionary

Published by Jordan Capizola | updated on November 28, 2016

This is a public version of the Data Dictionary from NephCure Kidney Network. Use it to form your own data dictionary. Read more