|PCORnet Network Affiliation|
|PCORnet Network Position||
Hi, I’m Ben (W. Benjamin Nowell), Director, Patient-Centered Research, at the Global Healthy Living Foundation (GHLF), CreakyJoints® and co-Principal Investigator of ArthritisPower™ Patient-Powered Research Network developed with support from the Patient-Centered Outcomes Research Institute (PCORI) in partnership with comparative effectiveness researchers at the University of Alabama at Birmingham. In his role at GHLF, he builds infrastructure to facilitate the meaningful and ongoing participation in research of people living with chronic conditions through partnerships with patient advocates and leading scientists. He also leads several comparative effectiveness research engagement awards and shared decision making projects. His research interests include examination of the factors that facilitate patient engagement as research partners, and patient-reported outcomes and shared decision making in rheumatologic conditions. Prior to joining GHLF, Ben worked as a medical social worker and Community and Long-Term Care Coordinator for the Ottawa Regional Stroke Centre and as Research Coordinator for an evaluation of participant outcomes in Arthritis Foundation chronic disease self-management programs for arthritis. He holds a Master’s degree in Social Welfare (MSW) from the University of California at Berkeley and a doctorate in Social Work (PhD) from Columbia University.
Global Healthy Living Foundation, CreakyJoints
|Primary Institution Title||
Director, Patient-Centered Research
rheumatology, shared decision making