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Fostering engagement through stories

This topic contains 2 replies, has 2 voices, and was last updated by Profile photo of Kathleen McTigue Kathleen McTigue 4 days, 9 hours ago.

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  • #2262
    Profile photo of Kathleen McTigue
    Kathleen McTigue
    Participant

    At PaTH, we are collecting patient and caregivers’ stories through the My PaTH Story Booth initiative. People from across the country are invited to share and we hope the MyPaTH Story Booth archives will serve as an engagement resource for diverse PCORnet researchers and beyond. We also hope the stories help develop people-centered research questions and foster stakeholder engagement.

    I’d love to hear how patient stories have influenced your thinking about health and health care. What ideas have these stories stimulated?  Have these stories provided you with valuable insight into what it is like to live with illness? How could you use these insights in your everyday practice and in your research? Would you be interested in sharing your own health story? Why or why not?

    Looking forward to a rich conversation!

     

    #2269
    Profile photo of Jennifer Cook
    Jennifer Cook
    Participant

    Hi Kathleen,

    Thank you so much for a fantastic Best Practices Sharing Session!  I went back to the link you provided in the slides to try to find some examples of recordings, but I couldn’t find where those are archived.  Are some of the recordings  available to the general public? If so, where?

     

    Thanks!

    Jenny

    #2293
    Profile photo of Kathleen McTigue
    Kathleen McTigue
    Participant

    Hi Jenny –

    Thanks for your feedback on the session! A subset of the recordings have been posted to the PaTH website, with the story-tellers’ permission. Here’s the link: http://www.pathnetwork.org/Community/story_booth.html — or you can navigate there from the “For Patients and Our Community” page of the PaTH website (pathnetwork.org).

    Best,

    Kathleen

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